DANVILLE, Ill. (WCIA) — A man with a rare skin condition is hoping surgery can minimize his pain.
21-year-old Thomas Clark has Epidermolysis Bullosa, or EB, a rare condition that makes his skin extremely fragile and prone to blistering. EB not only affects the skin outside Clark’s body, but also inside, including his gums. Normal dentist visits are almost impossible, creating several oral issues for Clark that making eating painful.
Anesthesia and surgery can help, but it’s expensive. Clark’s parents have taken him to a specialist before, but the cost, even with insurance, has prevented them from going back. One visit is about $2,700, and Clark needs several.
Clark’s mother Brenda says if they put the surgery off any longer, Clark might have to use a feeding tube. His family and friends have organized a benefit at Knights of Columbus in Danville to help. It starts at noon Saturday, June 2. There will be music, food and raffles, with all money raised going toward Clark’s procedures.